Awardee InSite Field List

participantId

PMI-specific ID generated by the RDR and used for tracking/linking participant data. Human-readable 10-character string beginning with P.

firstName

The first name of the participant.

middleName

The middle name of the participant.

lastName

The last name of the participant.

zipCode

The postal zip code of the participant.

state

The state the participant lives in.

city

The city the participant lives in.

streetAddress

Line 1 of the street address the participant lives at.

streetAddress2

Line 2 of the street address the participant lives at. Absent if no line 2 given.

phoneNumber

The phone number of the participant.

email

The email address participant provided to register.

dateOfBirth

The day the participant was born.

organization

An organization a participant is paired with or UNSET if none.

withdrawalStatus

Indicates whether the participant has withdrawn from the study and does not want their data used in future.

Values:

  • not_withdrawn

  • withdrawn

withdrawalTime

The actual date and time at which the participant chose to stop participating in the Participant Portal.

deactivationStatus

Indicates whether the participant has indicated they do not want to be contacted anymore; also shouldn’t have any EHR data transferred after the given suspension date.

Values:

  • not_deactivated

  • deactivated

deactivationTime

The date and time at which the participant has indicated they do not want to be contacted anymore; also shouldn’t have any EHR data transferred after the given suspension date.

deceasedStatus

Indicates whether the participant has a pending or approved deceased report.

Values:

  • Pending = pending report

  • Deceased = report approved

  • unset = no deceased report or a denied deceased report

deceasedAuthored

The UTC timestamp of when the report was entered into an external system, or when it was approved externally if it has been approved.

clinicPhysicalMeasurementsStatus

Indicates whether this participant has completed physical measurements.

Values:

  • unset

  • Completed

  • Cancelled

clinicPhysicalMeasurementsFinalizedTime

Indicates the latest time physical measurements were finalized for the participant.

clinicPhysicalMeasurementsFinalizedSite

An indicator for the site where the physical measurements were finalized for each participant.

selfReportedPhysicalMeasurementsStatus

Indicates whether this participant has completed self-reported physical measurements.

Values:

  • unset

  • Completed

  • Cancelled

selfReportedPhysicalMeasurementsAuthored

Indicates the latest time the participant authored the survey for self-reporting physical measurements.

consentForElectronicHealthRecords

Indicates whether electronic health records (EHR) consent has been received. If an EHR authorization has expired, the value will be set back to no.

Values:

  • yes

  • no

consentForElectronicHealthRecordsAuthored

Indicates the latest time at which the participant completed consent with the answer indicated in the status field.

consentForElectronicHealthRecordsFirstYesAuthored

Indicates the first time at which the participant consented with Yes

firstEhrReceiptTime

UTC timestamp indicating when RDR was first made aware of signed and uploaded EHR documents.

latestEhrReceiptTime

UTC timestamp indicating the latest time RDR was aware of signed and uploaded EHR documents.

consentForStudyEnrollment

Indicates whether enrollment consent, or pediatric permission, has been received.

Values:

  • yes

  • no

consentForStudyEnrollmentAuthored

The UTC date time of the latest time the participant, or a guardian, completed the necessary consent/permission forms to be considered consented for study enrollment.

patientStatus

A flag available for sites of in person enrollment. A participant can have a status from multiple sites. Example:

"patientStatus": {
    “PITT_UPMC”: “YES”,
    “PITT_TEMPLE”: “NO_ACCESS”,
    “PITT_SOMETHING”: “NO”
}

Note

The following values are available.

  • Yes: Confirmed in EHR system.

  • No: Not found in EHR system.

  • No Access: Unable to check EHR system.

  • Unknown: Inconclusive search results.

  • Not Applicable (will apply to DVs only).

enrollmentStatus

Participant’s most recently obtained enrollment status. Statuses are defined by the current data glossary.

Values:

  • registered

  • participant

  • participant_ehr_consent

  • enrolled

  • pmb_eligibile

  • core_minus_pm

  • core_participant

enrollmentStatusTime

Timestamp the most recent enrollment status was achieved.

biospecimenSourceSite

The site where the biospecimens were initially created for the participant

biospecimenOrderTime

The first time at which the biospecimens were finalized in UTC.

biospecimenStatus

An indicator for whether biospecimens have been finalized for the participant

Values:

  • unset

  • created

  • collected

  • processed

  • finalized

sample1SAL2CollectionMethod

Gives how the 1SAL2 sample was collected (ie on site or using a mail kit)

Values:

  • unset

  • mail_kit

  • on_site

sampleStatus1SAL2

The result of biobank processing on sample 1SAL2.

Values:

  • unset

  • received

  • disposed

  • consumed

  • unknown

  • sample_not_received

  • sample_not_processed

  • accessinging_error

  • lab_accident

  • qns_for_processing

  • quality_issue

sampleOrderStatus1SAL2

The individual order status of sample 1SAL2.

Values:

  • unset

  • created

  • collected

  • processed

  • finalized

sampleOrderStatus1SAL2Time

The time the sample was marked as finalized by the processing site.

primaryLanguage

Indicates the language of the consent that the participant signed.

Values:

  • en

  • es

genderIdentity

The personal sense of one’s own gender. It can correlate with assigned sex at birth or can differ from it.

Values:

  • PMI_Skip

  • GenderIdentity_Man

  • GenderIdentity_Woman

  • GenderIdentity_NonBinary

  • GenderIdentity_Transgender

  • GenderIdentity_AdditionalOptions

  • GenderIdentity_PreferNotToAnswer

  • PMI_PreferNotToAnswer

awardee

Name of the HPO.

isEhrDataAvailable

Indicates whether Electronic Health Records (EHR) are currently present for the participant. This can be both participant mediated or HPO provided.

Values:

  • yes

  • no

aian

Denotes if the participants race is AI_AN (AMERICAN_INDIAN_OR_ALASKA_NATIVE).

questionnaireOnOverallHealth

Indicates status for Overall Health questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnOverallHealthAuthored

Indicates the time at which the participant completed the overall health questionnaire.

questionnaireOnLifestyle

Indicates the status of lifestyle questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnLifestyleAuthored

Indicates the time at which the participant completed the lifestyle questionnaire.

questionnaireOnTheBasics

Indicates the status of TheBasics questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnTheBasicsAuthored

Indicates the time at which the participant completed the basics questionnaire.

questionnaireOnHealthcareAccess

Indicates the status of HealthcareAccess questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnHealthcareAccessAuthored

Indicates the time at which the participant completed the health care access questionnaire.

questionnaireOnSocialDeterminantsOfHealth

Indicates the status of SocialDeterminantsOfHealth questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnSocialDeterminantsOfHealthAuthored

Indicates the time at which the participant completed the social determinants of health questionnaire.

questionnaireOnPersonalAndFamilyHealthHistory

Indicates the status PersonalAndFamilyHealthHistory questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnPersonalAndFamilyHealthHistoryAuthored

Indicates the time at which the participant completed the personal and family health history questionnaire.

questionnaireOnLifeFunctioning

Indicates the status of LifeFunctioning questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnLifeFunctioningAuthored

Indicates the time at which the participant completed the Life Functioning questionnaire.

questionnaireOnEmotionalHealthHistoryAndWellBeing

Indicates the status of EmotionalHealthHistoryAndWellBeing questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnEmotionalHealthHistoryAndWellBeingAuthored

Indicates the time at which the participant completed the Emotional Health History and Well Being questionnaire.

questionnaireOnBehavioralHealthAndPersonality

Indicates the status of BehavioralHealthAndPersonality questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnBehavioralHealthAndPersonalityAuthored

Indicates the time at which the participant completed the Behavioral Health & Personality questionnaire.

questionnaireOnSocialFactorsUpdate

Indicates the status of Social Factors Update questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnSocialFactorsUpdateAuthored

Indicates the time at which the participant completed the Social Factors Update questionnaire.

questionnaireOnHealthAndWellnessUpdate

Indicates the status of Health And Wellness Update questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnHealthAndWellnessUpdateAuthored

Indicates the time at which the participant completed the Health And Wellness Update questionnaire.

questionnaireOnMentalHealthAndWellBeingUpdate

Indicates the status of Mental Health And WellBeing Update questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnMentalHealthAndWellBeingUpdateAuthored

Indicates the time at which the participant completed the Mental Health And WellBeing Update questionnaire.

questionnaireOnPersonalAndFamilyHealthHistoryUpdate

Indicates the status of Personal And Family Health History Update questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnPersonalAndFamilyHealthHistoryUpdateAuthored

Indicates the time at which the participant completed the Personal And Family Health History Update questionnaire.

questionnaireOnPediatricBasics

Indicates the status of Pediatric Basics questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnPediatricBasicsAuthored

Indicates the time at which the participant completed the Pediatric Basics questionnaire.

questionnaireOnPediatricOverallHealth

Indicates the status of Pediatric Overall Health questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnPediatricOverallHealthAuthored

Indicates the time at which the participant completed the Pediatric Overall Health questionnaire.

questionnaireOnPediatricEnvironmentalHealth

Indicates the status of Pediatric Environmental Health questionnaire.

Values:

  • submitted_complete

  • unset

questionnaireOnPediatricEnvironmentalHealthAuthored

Indicates the time at which the participant completed the Pediatric Environmental Health questionnaire.

retentionEligibleStatus

Present if a participant is considered eligible for retention or not.

Values:

  • unset

  • eligible

  • not_eligible

retentionEligibleTime

Retention eligible time.

lastActiveRetentionActivityTime

Last active retention activity time.

retentionType

Retention type.

Values:

  • unset

  • active

  • passive

  • active and passive

signUpTime

The time at which the participant initially signed up for All Of Us

withdrawalReason

Reason for withdrawal. Only administrative withdrawals have a reason.

duplicateAccountStatus

Duplicate account status.

Values:

  • yes

  • no

race

A race is a grouping of humans based on shared physical or social qualities into categories generally viewed as distinct by society. First used to refer to speakers of a common language and then to denote national affiliations, by the 17th century the term race began to refer to physical (phenotypical) traits.

Values:

  • Hispanic

  • Asian

  • White

  • AIAN

  • MENA

  • NHPI

  • Black

  • other_race

  • RaceEthnicityNoneOfThese

  • PMI_PreferNotToAnswer

  • PMI_Skip

ageRange

The “bucketed” age range of participant.

Values:

  • 0-6

  • 7-12

  • 13-17

  • 18-25

  • 26-35

  • 36-45

  • 46-55

  • 56-65

  • 66-75

  • 76-85

  • 86+