Participant Summary Field List

Summary fields extracted from participant data (combined from multiple tables). Consented participants only.

participantId: PMI-specific ID generated by the RDR and used for tracking/linking participant data. Human-readable 10-character string beginning with P.

biobankId: PMI-specific ID generated by the RDR and used exclusively for communicating with the biobank. Human-readable 10-character string beginning with prefix specific to the environment (“A” for production).

firstName: The first name of the participant.

middleName: The middle name of the participant.

lastName: The last name of the participant.

zipCode: The postal zip code of the participant.

state: The state the participant lives in.

city: The city the participant lives in

streetAddress: Line 1 of the street address the participant lives at.

streetAddress2: Line 2 of the street address the participant lives at. Absent if no line 2 given.

phoneNumber: The phone number of the participant.

loginPhoneNumber: A verified phone number for register, participants must provide a login_phone_number or email to register

email: The email address participant provided to register; they must provide an email or a login_phone_number

primaryLanguage: Indicates the language of the consent that the participant signed. We only have “en” or “es” for now. @rdr_dictionary_show_unique_values

recontactMethod: Which method the participant would like used for contact. i.e. phone or email.

language: Deprecated

dateOfBirth: The day the participant was born.

ageRange

The “bucketed” age range of participant.

Enumerated values

ageAtConsentMonths: Whole number representing the age of the participant, in months, the first time they signed the Primary consent.

genderIdentity

The personal sense of one’s own gender. It can correlate with assigned sex at birth or can differ from it.

Enumerated values

sex: Assigned sex at birth.

sexualOrientation: A person’s sexual identity in relation to the gender to which they are attracted.

race

A race is a grouping of humans based on shared physical or social qualities into categories generally viewed as distinct by society. First used to refer to speakers of a common language and then to denote national affiliations, by the 17th century the term race began to refer to physical (phenotypical) traits.

Enumerated values

education: The highest level of education the participant has received.

income: Participant answer to what is your annual household income from all sources

deceasedStatus

Indicates whether the participant has a PENDING or APPROVED deceased reports.

Will be UNSET for participants that have no deceased reports or only DENIED reports.

deceasedAuthored: The UTC timestamp of when the report was entered into an external system, or when it was approved externally if it has been approved.

dateOfDeath: Date of death if provided on the deceased report or when it was reviewed.

hpoId: HPO marked as primary for this participant, if any

awardee: Copy of the hpoId field

organization: An organization a participant is paired with or UNSET if none.

site: A physical location a participant is paired with or UNSET if none.

enrollmentSite: A physical location a participant is enrolled with or UNSET if none.

enrollmentStatus

Depends on a number of factors including questionnaires and biobank samples completed

:ref:`Enumerated values <enrollment_status>

enrollmentStatusMemberTime: Present when a participant has completed an EHR consent, is the timestamp of when that consent was authored

enrollmentStatusCoreMinusPMTime: is the timestamp of when meet the CORE_MINUS_PM status criteria

enrollmentStatusCoreStoredSampleTime

Present when a participant has completed all baseline modules, physical measurements, and has DNA samples stored.

Is the latest date from the list of:

The earliest date of sampleStatus…Time (any of the DNA sample tests:
ed10, 2ed02, 2ed04, 2ed10, 1ed04, 1sal, 1sal2, 2sal0)
enrollmentStatusMemberTime
questionnaireOnTheBasicsTime
questionnaireOnLifestyleTime
questionnaireOnOverallHealthTime
clinicPhysicalMeasurementsFinalizedTime
selfReportedPhysicalMeasurementsAuthored

enrollmentStatusCoreOrderedSampleTime

Present when a participant has completed all baseline modules, physical measurements, and DNA samples have been ordered

Is the latest date from the list of:

The earliest date of sampleOrderStatus…Time (any of the DNA sample tests:
ed10, 2ed02, 2ed04, 2ed10, 1ed04, 1sal, 1sal2, 2sal0)
enrollmentStatusMemberTime
questionnaireOnTheBasicsTime
questionnaireOnLifestyleTime
questionnaireOnOverallHealthTime
clinicPhysicalMeasurementsFinalizedTime
selfReportedPhysicalMeasurementsAuthored

enrollmentStatusV3_0: Participant’s current enrollment status as defined by the 3.0 data glossary

enrollmentStatusParticipantV3_0Time: UTC time the participant has reached the ‘PARTICIPANT’ enrollment status defined by the 3.0 data glossary

enrollmentStatusParticipantPlusEhrV3_0Time: UTC time the participant has reached the ‘PARTICIPANT_PLUS_EHR’ enrollment status defined by the 3.0 data glossary

enrollmentStatusPmbEligibleV3_0Time: UTC time the participant has reached the ‘PARTICIPANT_PMB_ELIGIBLE’ enrollment status defined by the 3.0 data glossary

enrollmentStatusCoreMinusPmV3_0Time: UTC time the participant has reached the ‘CORE_MINUS_PM’ enrollment status defined by the 3.0 data glossary

enrollmentStatusCoreV3_0Time: UTC time the participant has reached the ‘CORE_PARTICIPANT’ enrollment status defined by the 3.0 data glossary

enrollmentStatusPmbEligibleV3_2Time: UTC time the participant has reached the ‘PARTICIPANT_PMB_ELIGIBLE’ enrollment status defined by the 3.3 data glossary

hasCoreData: A true or false value that indicates whether the RDR has all data points defined as requirements for Core Data are collected for the participant. Distinct from enrollments statuses because requirements for Core Data are not entirely driven to completion by participant actions (e.g. a participant can provide a dna sample, but for Core Data that sample needs to be sequenced).

hasCoreDataTime: UTC time the participant has completed the Core Data requirements defined by the 3.2 data glossary

consentCohort

Cohort assignment based on the date the participant enrolled in the program.

Enumerated values

cohort2PilotFlag

Indicates whether a participant was designated for the Genomics pilot. The pilot participants were only drawn from Cohort 2.

Enumerated values

ehrStatus

Warning

DEPRECATED - use wasEhrDataAvailable instead.

@deprecated Use wasEhrDataAvailable (was_ehr_data_available) instead

Indicates whether Electronic Health Records (EHR) have ever been present for the participant.

Enumerated values

ehrReceiptTime: Warning

DEPRECATED - use firstEhrReceiptTime instead.

UTC timestamp indicating the first upload timestamp of an EHR file for the participant

ehrUpdateTime: Warning

DEPRECATED - use latestEhrReceiptTime instead.

UTC timestamp indicating the most recent upload timestamp of an EHR file for the participant

isEhrDataAvailable: A true or false value that indicates whether Electronic Health Records (EHR) are currently present for the participant.

wasEhrDataAvailable: A true or false value that indicates whether Electronic Health Records (EHR) have ever been present for the participant.

firstEhrReceiptTime: UTC timestamp indicating when RDR was first made aware of signed and uploaded EHR documents

latestEhrReceiptTime: UTC timestamp indicating the latest time RDR was aware of signed and uploaded EHR documents

isParticipantMediatedEhrDataAvailable: A true or false value that indicates whether participant-mediated Electronic Health Records (EHR) are currently present for the participant.

wasParticipantMediatedEhrAvailable: A true or false value that indicates whether participant-mediated Electronic Health Records (EHR) have ever been present for the participant. Mediated EHR is a separate EHR source than HPO-provided EHR

firstParticipantMediatedEhrReceiptTime: UTC timestamp indicating first reported occurrence of participant-mediated EHR content

latestParticipantMediatedEhrReceiptTime: UTC timestamp indicating the latest reported occurrence of participant-mediated EHR content

healthDataStreamSharingStatus: Provides whether EHR files have been or currently are available for the participant

healthDataStreamSharingStatusTime: UTC timestamp indicating the most recent timestamp between the ehrUpdateTime and latestParticipantMediatedEhrReceiptTime

clinicPhysicalMeasurementsStatus

Indicates whether this participant has completed physical measurements.

Enumerated values

clinicPhysicalMeasurementsTime: Indicates the latest time physical measurements were submitted for the participant

clinicPhysicalMeasurementsFinalizedTime: Indicates the latest time physical measurements were finalized for the participant

clinicPhysicalMeasurementsCreatedSite: An indicator for the site where the physical measurements were created for each participant

clinicPhysicalMeasurementsFinalizedSite: An indicator for the site where the physical measurements were finalized for each participant

selfReportedPhysicalMeasurementsStatus

Indicates whether this participant has completed self-reported physical measurements

Enumerated values

selfReportedPhysicalMeasurementsAuthored: Indicates the latest time the participant authored the survey for self-reporting physical measurements

numberDistinctVisits: The number of distinct visits to a health care provider that the participant has made that supplied data

signUpTime: The time at which the participant initially signed up for All Of Us

withdrawalStatus

Indicates whether the participant has withdrawn from the study and does not want their data used in future.

Enumerated values

withdrawalReason

If withdrawalReason is UNSET the participant is self withdrawn, any other enumeration means the participant was administratively withdrawn.

Enumerated values

withdrawalTime: The date and time at which the participant withdrew from the study (48 hour delay from the real time the participant clicked the withdraw button)

withdrawalAuthored: The actual time at which the participant chose to stop participating in the Participant Portal

withdrawalReasonJustification: Related to administrative withdrawals, used when withdrawal_reason is not unset; allows for additional explanation related to withdrawal reason

suspensionStatus

Indicates whether the participant has indicated they do not want to be contacted anymore; also shouldn’t have any EHR data transferred after the given suspension date

Enumerated values

suspensionTime: The date and time at which the participant has indicated they do not want to be contacted anymore; also shouldn’t have any EHR data transferred after the given suspension date

participantOrigin: The sign up portal the participant used to enroll (Vibrent, Care Evolution). @rdr_dictionary_show_unique_values

patientStatus

A flag available for sites of in person enrollment. A participant can have a status from multiple sites. Example:

"patientStatus": {
    “PITT_UPMC”: “YES”,
    “PITT_TEMPLE”: “NO_ACCESS”,
    “PITT_SOMETHING”: “NO”
}

Note

The following values are available.

Yes: Confirmed in EHR system.
No: Not found in EHR system.
No Access: Unable to check EHR system.
Unknown: Inconclusive search results.
Not Applicable (will apply to DVs only).

digitalHealthSharingStatus

This field indicates the digital health sharing status for Fitbit, Apple HealthKit and Apple EHR. This field is a Json value with and current status and authored date, and also with all the consent histories.

Note

The following values are available.

YES: start sharing
NO: stop sharing

consentForStudyEnrollment

Indicates whether enrollment consent, or pediatric permission, has been received

Enumerated values

consentForStudyEnrollmentTime: UTC timestamp indicating the time at which consent has been received by RDR (ISO-8601 time)

consentForStudyEnrollmentAuthored: The UTC date time of the latest time the participant, or a guardian, completed the survey, regardless of when it was sent to RDR

consentForStudyEnrollmentFirstYesAuthored: The UTC date time of the first time the consent was completed, regardless of when it was sent to RDR

semanticVersionForPrimaryConsent: The human readable version of primary consent the participant signed

reconsentForStudyEnrollmentAuthored: The UTC date time of when the participant re-consented to the program (if a reconsent was performed for this participant)

consentForElectronicHealthRecords

Indicates whether electronic health records (EHR) consent has been received

Enumerated values

consentForElectronicHealthRecordsTime: Indicates the time at which the RDR received notice of consentForElectronicHealthRecords.

consentForElectronicHealthRecordsAuthored: Indicates the latest time at which the participant completed consent, regardless of when it was sent to RDR.

consentForElectronicHealthRecordsFirstYesAuthored: Indicates the first time at which the participant consented with Yes

ehrConsentExpireStatus

Indicates whether the EHR consent has expired per rules for impacted states (Maine, Maryland, Montana, Wyoming) For HPO participants, the EHR consent is based on the HPO state and not the participant’s residence.

Enumerated values

ehrConsentExpireTime: Indicates the time at which the RDR received notice of the EHR consent expiration which may be subject to expiration in certain states

ehrConsentExpireAuthored: Indicates the time at which the participant completed an EHR consent which may be subject to expiration in certain states

reconsentForElectronicHealthRecordsAuthored: The UTC date time of when the participant re-consented for sharing electronic health records (if a reconsent was performed for this participant)

consentForDvElectronicHealthRecordsSharing

Indicates whether direct-volunteer electronic health record sharing consent has been received

Enumerated values

consentForDvElectronicHealthRecordsSharingTime: Indicates the time at which the RDR received notice of consentForDvElectronicHealthRecordsSharing

consentForDvElectronicHealthRecordsSharingAuthored: Indicates the time at which the participant completed consent, regardless of when it was sent to RDR

consentForGenomicsROR

Indicates whether genomic return of results consent has been received

Enumerated values

consentForGenomicsRORTime: Indicates the time the genomic return of results was received by the RDR

consentForGenomicsRORAuthored: Indicates the time the participant signed the genomic return of results

consentForCABoR

Indicates whether the participant has consented to the California Bill of Rights consent questionnaire

Enumerated values

consentForCABoRTime: Indicates the time at which the RDR received notice of consentForCABoR

consentForCABoRAuthored: Indicates the time at which the participant completed California Bill of Rights consent, regardless of when it was sent to RDR

consentForEtM

Indicates whether the participant has consented to the Exploring the Mind consent questionnaire

Enumerated values

consentForEtMTime: Indicates the time at which the RDR received notice of consentForEtM

consentForEtMAuthored: Indicates the time at which the participant completed Exploring the Mind consent, regardless of when it was sent to RDR

questionnaireOnOverallHealth

Indicates status for Overall Health (or Pediatric Overall Health) PPI module

Enumerated values

questionnaireOnOverallHealthTime: Indicates the time at which the RDR received notice of overall health questionnaire

questionnaireOnOverallHealthAuthored: Indicates the time at which the participant completed the overall health questionnaire

questionnaireOnLifestyle

Indicates the status of a questionnaire on lifestyle

Enumerated values

questionnaireOnLifestyleTime: Indicates the time at which the RDR received notice of lifestyle questionnaire

questionnaireOnLifestyleAuthored: Indicates the time at which the participant completed the lifestyle questionnaire

questionnaireOnTheBasics

Indicates the status of a questionnaire on TheBasics (or Pediatric Basics) that a participant can fill out.

Enumerated values

questionnaireOnTheBasicsTime: The UTC Date time of when the RDR received the basics questionnaire.

questionnaireOnTheBasicsAuthored: The UTC Date time of when the participant completed the basics questionnaire.

baselineQuestionnairesFirstCompleteAuthored: The UTC Date time of when the participant first time completed all the baseline questionnaire.

questionnaireOnHealthcareAccess

Indicates status of a questionnaire on HealthcareAccess that a participant can fill out.

Enumerated values

questionnaireOnHealthcareAccessTime: Indicates the time at which the RDR received notice of health care access questionnaire.

questionnaireOnHealthcareAccessAuthored: Indicates the time at which the participant completed the health care access questionnaire.

questionnaireOnMedicalHistory

Indicates the status of a questionnaire on MedicalHistory that a participant can fill out.

Enumerated values

questionnaireOnMedicalHistoryTime: Indicates the time at which the RDR received notice of medical history questionnaire

questionnaireOnMedicalHistoryAuthored: Indicates the time at which the participant completed the medical history questionnaire

questionnaireOnMedications

Indicates status of a questionnaire on Medications that a participant can fill out.

Enumerated values

questionnaireOnMedicationsTime: Indicates the time at which the RDR received notice of medications questionnaire.

questionnaireOnMedicationsAuthored: Indicates the time at which the participant completed the medications questionnaire.

questionnaireOnFamilyHealth

Indicates the status of a questionnaire on FamilyHealth that a participant can fill out.

Enumerated values

questionnaireOnFamilyHealthTime: Indicates the time at which the RDR received notice of family health questionnaire.

questionnaireOnFamilyHealthAuthored: Indicates the time at which the participant completed the family health questionnaire.

questionnaireOnSocialDeterminantsOfHealth

Indicates the status of a questionnaire on SocialDeterminantsOfHealth that a participant can fill out.

Enumerated values

questionnaireOnSocialDeterminantsOfHealthTime: Indicates the time at which the RDR received notice of social determinants of health questionnaire.

questionnaireOnSocialDeterminantsOfHealthAuthored: Indicates the time at which the participant completed the social determinants of health questionnaire.

questionnaireOnPersonalAndFamilyHealthHistory

Indicates the status of a questionnaire on FamilyAndPersonalHealthHistory that a participant can fill out.

Enumerated values

questionnaireOnPersonalAndFamilyHealthHistoryTime: Indicates the time at which the RDR received notice of family and personal health history questionnaire.

questionnaireOnPersonalAndFamilyHealthHistoryAuthored: Indicates the time at which the participant completed the family and personal health history questionnaire.

questionnaireOnCopeMay

questionnaireOnCopeJune

questionnaireOnCopeJuly

questionnaireOnCopeNov

questionnaireOnCopeDec

questionnaireOnCopeFeb

Indicates the status of a periodic questionnaire on COVID Participant Experience (COPE) that a participant can fill out.

Enumerated values

questionnaireOnCopeMayTime

questionnaireOnCopeJuneTime

questionnaireOnCopeJulyTime

questionnaireOnCopeNovTime

questionnaireOnCopeDecTime

questionnaireOnCopeFebTime: Indicates the time at which the RDR received notice of the specified COPE questionnaire.

questionnaireOnCopeMayAuthored

questionnaireOnCopeJuneAuthored

questionnaireOnCopeJulyAuthored

questionnaireOnCopeNovAuthored

questionnaireOnCopeDecAuthored

questionnaireOnCopeFebAuthored: Indicates the time at which the participant completed the specified COPE questionnaire.

questionnaireOnCopeVaccineMinute1: Indicates whether the participant has submitted a response to the first COPE Covid Vaccine Minute survey

questionnaireOnCopeVaccineMinute1Authored: Indicates the time at which the participant completed the first COPE Covid Vaccine Minute survey

questionnaireOnCopeVaccineMinute2: Indicates whether the participant has submitted a response to the second COPE Covid Vaccine Minute survey

questionnaireOnCopeVaccineMinute2Authored: Indicates the time at which the participant completed the second COPE Covid Vaccine Minute survey

questionnaireOnCopeVaccineMinute3: Indicates whether the participant has submitted a response to the third COPE Covid Vaccine Minute survey

questionnaireOnCopeVaccineMinute3Authored: Indicates the time at which the participant completed the third COPE Covid Vaccine Minute survey

questionnaireOnCopeVaccineMinute4: Indicates whether the participant has submitted a response to the fourth COPE Covid Vaccine Minute survey

questionnaireOnCopeVaccineMinute4Authored: Indicates the time at which the participant completed the fourth COPE Covid Vaccine Minute survey

questionnaireOnDnaProgram

Indicates the status of a questionnaire of the DNA program that a participant can fill out

Enumerated values

questionnaireOnDnaProgramAuthored: The UTC Date time of when the participant completed the DNA program questionnaire

questionnaireOnLifeFunctioning

Indicates the status of the life functioning survey questionnaire that a participant can fill out

Enumerated values

questionnaireOnLifeFunctioningTime: Indicates the time at which the RDR received notice of life functioning survey questionnaire.

questionnaireOnLifeFunctioningAuthored: The UTC Date time of when the participant completed the life functioning survey questionnaire

questionnaireOnEnvironmentalExposures

Indicates status for the pediatric Environmental Exposures PPI module.

Enumerated values

questionnaireOnEnvironmentalExposuresTime: Indicates the time at which the RDR received notice of pediatric Environmental Exposures questionnaire response

questionnaireOnEnvironmentalExposuresAuthored: Indicates the time at which the participant completed the pediatric Environmental Exposures questionnaire

numCompletedBaselinePPIModules: The count of how many of [questionnaireOnTheBasics, questionnaireOnOverallHealth, questionnaireOnLifestyle] the participant has completed. Or the count of how many of [questionnaireOnTheBasics, questionnaireOnOverallHealth, questionnaireOnEnvironmentalExposures] have been completed for a pediatric participant.

numCompletedPPIModules: The count of all PPI modules the participant has completed (or have been completed for pediatric participants).

biospecimenStatus

An indicator for whether biospecimens have been finalized for the participant

Enumerated values

biospecimenOrderTime: The first time at which the biospecimens were finalized in UTC.

biospecimenSourceSite: The site where the biospecimens were initially created for the participant

biospecimenCollectedSite: The site where the biospecimens were initially collected for the participant

biospecimenProcessedSite: The site where the biospecimens were initially processed for the participant

biospecimenFinalizedSite: The site where the biospecimens were initially finalized for the participant

sampleStatus1SST8

The result of biobank processing on sample 1SST8.

Enumerated values

sampleStatus1SST8Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus2SST8

The result of biobank processing on sample 2SST8.

Enumerated values

sampleStatus2SST8Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus1SS08

The result of biobank processing on sample 1SS08.

Enumerated values

sampleStatus1SS08Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus1PST8

The result of biobank processing on sample 1PST8.

Enumerated values

sampleStatus1PST8Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus2PST8

The result of biobank processing on sample 2PST8.

Enumerated values

sampleStatus2PST8Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus1PS08

The result of biobank processing on sample 1PS08.

Enumerated values

sampleStatus1PS08Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus1PS4A

The result of biobank processing on sample 1PS4A.

Enumerated values

sampleStatus1PS4ATime: The datetime in UTC in which the biobank processed the sample.

sampleStatus1PS4B

The result of biobank processing on sample 1PS4B.

Enumerated values

sampleStatus1PS4BTime: The datetime in UTC in which the biobank processed the sample.

sampleStatus2PS4A

The result of biobank processing on sample 2PS4A.

Enumerated values

sampleStatus2PS4ATime: The datetime in UTC in which the biobank processed the sample.

sampleStatus2PS4B

The result of biobank processing on sample 2PS4B.

Enumerated values

sampleStatus2PS4BTime: The datetime in UTC in which the biobank processed the sample.

sampleStatus1HEP4

The result of biobank processing on sample 1HEP4.

Enumerated values

sampleStatus1HEP4Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus1ED04

The result of biobank processing on sample 1ED04.

Enumerated values

sampleStatus1ED04Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus1ED10

The result of biobank processing on sample 1ED10.

Enumerated values

sampleStatus1ED10Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus2ED10

The result of biobank processing on sample 2ED10.

Enumerated values

sampleStatus2ED10Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus1UR10

The result of biobank processing on sample 1UR10.

Enumerated values

sampleStatus1UR10Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus1UR90

The result of biobank processing on sample 1UR90.

Enumerated values

sampleStatus1UR90Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus1SAL

The result of biobank processing on sample 1SAL.

Enumerated values

sampleStatus1SALTime: The datetime in UTC in which the biobank processed the sample.

sampleStatus1SAL2

The result of biobank processing on sample 1SAL2.

Enumerated values

sampleStatus1SAL2Time: The datetime in UTC in which the biobank processed the sample.

sample1SAL2CollectionMethod

Gives how the 1SAL2 sample was collected (ie on site or using a mail kit)

Enumerated values

sampleStatus1ED02

The result of biobank processing on sample 1ED02.

Enumerated values

sampleStatus1ED02Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus1CFD9

The result of biobank processing on sample 1CFD9.

Enumerated values

sampleStatus1CFD9Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus1PXR2

The result of biobank processing on sample 1PXR2.

Enumerated values

sampleStatus1PXR2Time: The datetime in UTC in which the biobank processed the sample.

sampleStatusDV1SAL2

The result of biobank processing on sample DV1SAL2.

Enumerated values

sampleStatusDV1SAL2Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus2ED02

The result of biobank processing on sample 2ED02.

Enumerated values

sampleStatus2ED02Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus2ED04

The result of biobank processing on sample 2ED04.

Enumerated values

sampleStatus2ED04Time: The datetime in UTC in which the biobank processed the sample.

sampleStatus2SAL0

The result of biobank processing on sample 2SAL0.

Enumerated values

sampleStatus2SAL0Time: The datetime in UTC in which the biobank processed the sample.

sampleOrderStatusDV1SAL2

The individual order status of sample DV1SAL2.

Enumerated values

sampleOrderStatusDV1SAL2Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus1SST8

The individual order status of sample 1SST8.

Enumerated values

sampleOrderStatus1SST8Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus2SST8

The individual order status of sample 2SST8.

Enumerated values

sampleOrderStatus2SST8Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus1SS08

The individual order status of sample 1SS08.

Enumerated values

sampleOrderStatus1SS08Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus1PST8

The individual order status of sample 1PST8.

Enumerated values

sampleOrderStatus1PST8Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus2PST8

The individual order status of sample 2PST8.

Enumerated values

sampleOrderStatus2PST8Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus1PS08

The individual order status of sample 1PS08.

Enumerated values

sampleOrderStatus1PS08Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus1PS4A

The result of biobank processing on sample 1PS4A.

Enumerated values

sampleOrderStatus1PS4ATime: The datetime in UTC in which the biobank processed the sample.

sampleOrderStatus1PS4B

The result of biobank processing on sample 1PS4B.

Enumerated values

sampleOrderStatus1PS4BTime: The datetime in UTC in which the biobank processed the sample.

sampleOrderStatus2PS4A

The result of biobank processing on sample 2PS4A.

Enumerated values

sampleOrderStatus2PS4ATime: The datetime in UTC in which the biobank processed the sample.

sampleOrderStatus2PS4B

The result of biobank processing on sample 2PS4B.

Enumerated values

sampleOrderStatus2PS4BTime: The datetime in UTC in which the biobank processed the sample.

sampleOrderStatus1HEP4

The individual order status of sample 1HEP4.

Enumerated values

sampleOrderStatus1HEP4Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus1ED04

The individual order status of sample 1ED04.

Enumerated values

sampleOrderStatus1ED04Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus1ED10

The individual order status of sample 1ED10.

Enumerated values

sampleOrderStatus1ED10Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus2ED10

The individual order status of sample 2ED10.

Enumerated values

sampleOrderStatus2ED10Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus1UR10

The individual order status of sample 1UR10.

Enumerated values

sampleOrderStatus1UR10Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus1UR90

The individual order status of sample 1UR90.

Enumerated values

sampleOrderStatus1UR90Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus1SAL

The individual order status of sample 1SAL.

Enumerated values

sampleOrderStatus1SALTime: The time the sample was marked as finalized by the processing site.

sampleOrderStatus1SAL2

The individual order status of sample 1SAL2.

Enumerated values

sampleOrderStatus1SAL2Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus1ED02

The individual order status of sample 1ED02.

Enumerated values

sampleOrderStatus1ED02Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus1CFD9

The individual order status of sample 1CFD9.

Enumerated values

sampleOrderStatus1CFD9Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus1PXR2

The individual order status of sample 1PXR2.

Enumerated values

sampleOrderStatus1PXR2Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus2ED02

The individual order status of sample 2ED02.

Enumerated values

sampleOrderStatus2ED02Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus2ED04

The individual order status of sample 2ED04.

Enumerated values

sampleOrderStatus2ED04Time: The time the sample was marked as finalized by the processing site.

sampleOrderStatus2SAL0

The individual order status of sample 2SAL0.

Enumerated values

sampleOrderStatus2SAL0Time: The time the sample was marked as finalized by the processing site.

numBaselineSamplesArrived

The count of samples the biobank has recorded from baseline sample list [: 1ED04, 1ED10, 1HEP4, 1PST8, 2PST8, 1SST8, 2SST8, 1PS08, 1PS4A, 1PS4B, 2PS4A, 2PS4B, 1SS08, 1UR10, 1CFD9, 1PXR2, 1UR90, 2ED02, 2ED04, 2ED10

]

samplesToIsolateDNA

The sample status of any dna retrievable samples ordered for participant.

Enumerated values

DNA sample test codes

1ED10
2ED02
2ED04
2ED10
1ED04
1SAL
1SAL2
2SAL0

retentionEligibleStatus: Present if a participant is considered eligible for retention or not Enumerated values

retentionEligibleTime: Present the retention eligible time

lastActiveRetentionActivityTime: Present the last active retention activity time

retentionType: Present the retention type: ACTIVE, PASSIVE or ACTIVE_AND_PASSIVE

onsiteIdVerificationTime: Timestamp of the most recent id verification

onsiteIdVerificationType: The type of ID verification used for visit Enumerated values

onsiteIdVerificationVisitType: The type of visit on which ID verification occurred Enumerated values

onsiteIdVerificationUser: User who recorded ID verification occurrence

onsiteIdVerificationSite: The site where ID verification took place

remoteIdVerificationOrigin: The sign up portal where ID Verification took place ( Vibrent OR Care Evolution )

remoteIdVerificationStatus

A flag indicating whether the identity of a participant was verified remotely.: Unset if no remote identity verification has occurred. Set to TRUE when the participant is verified remotely. and set to FALSE if not.

remoteIdVerifiedOn: Date of the most recent remote id verification

everIdVerified: Has the participant’s ID been verified

firstIdVerifiedOn: Date of the first time the participant has their id verified

idVerificationOrigin: Was the participant ON_SITE or REMOTE

aian: Denotes if the participants race is AI_AN (AMERICAN_INDIAN_OR_ALASKA_NATIVE)

consentForNphModule1: Participant has NPH Module 1 consent

consentForNphModule1Authored: The time participant consent for NPH Module 1 was authored

nphWithdrawal: Participant has withdrawn from NPH

nphWithdrawalAuthored: The time participant withdrawal was authored

nphDeactivation: Participant has been deactivated from NPH

nphDeactivationAuthored: The time participant deactivation was authored

lastModified: UTC timestamp of the last time the participant summary was modified

questionnaireOnEmotionalHealthHistoryAndWellBeing: The status of Emotional Health History and Well Being survey Enumerated values

questionnaireOnEmotionalHealthHistoryAndWellBeingTime: UTC timestamp of time Emotional Health survey was received by RDR

questionnaireOnEmotionalHealthHistoryAndWellBeingAuthored: UTC timestamp of time Emotional Health survey was authored by participant

questionnaireOnBehavioralHealthAndPersonality: The status of Behavioral Health and Personality survey Enumerated values

questionnaireOnBehavioralHealthAndPersonalityTime: UTC timestamp of time Behavioral Health survey was received by RDR

questionnaireOnBehavioralHealthAndPersonalityAuthored: UTC timestamp of time Behavioral Health survey was authored by participant

hasHeightAndWeight: Field indicating whether there are valid height and weight measurements recorded for a participant. This field can be false regardless of the clinicPhysicalMeasurementsStatus and selfReportedPhysicalMeasurementsStatus, since the height or weight measurement may not have been included with those submissions. When true, the valid height and weight measurements may have come from separate physical measurements submissions.

hasHeightAndWeightTime: UTC time that both the height and weight measurements were first available. This value often corresponds to either the clinicPhysicalMeasurementsFinalizedTime or selfReportedPhyiscalMeasurementsAuthored time, provided the submission contained both valid height and weight measurements. Otherwise, this timestamp may reflect a subsequent submission that contained a height or weight measurement that was not provided previously.

consentForWearStudy: Indicates whether the participant has consented to participate in the WEAR study Enumerated values

consentForWearStudyTime: Indicates the time at which the RDR most recently received notice of consentForWearStudy, which could be an update to a previously submitted consent response (e.g., revocation of earlier consent)

consentForWearStudyAuthored: Indicates the time at which the participant most recently completed a WEAR study consent form, regardless of when it was sent to RDR

latestEtMTaskTime: Indicates the most recent time at which RDR received Exploring the Mind task data for this participant

latestEtMTaskAuthored: Indicates the most recent time at which the participant completed an Exploring the Mind task activity, regardless of when it was sent to RDR

Provides a list of participant accounts associated with this account. For a pediatric participant’s summary, this will be the list of guardians associated with the pediatric participant. And for a guardian’s summary, this will be the list of pediatric participants for which this participant is set as a guardian.

The “relation” field defines what the linked account is relative to the current one. A value of “guardian” specifies that the linked account is a guardian of the current account. A value of “pediatric” specifies that the current account is a guardian of the linked account.

The following is an example of the data provided for each link linked participant:

"relatedParticipants": [
    {
        "participantId": "P123456789",    // Participant ID of the linked account
        "firstName": "Jane",              // First name of the associated participant
        "lastName": "Smith"               // Last name of the associated participant
        "relation": "pediatric"           // Relationship of the account ("guardian" for guardian accounts)
    }
]

guardianParticipants

childParticipants

isPediatric: Field indicating whether this is a pediatric participant or not. The API will display as ‘UNSET’ for adult participants, and will return a boolean value of true if it’s a pediatric participant.